More tests

Got a call today to schedule a MRI and also a MRA. My nephrologist wants to rule out brain aneurysms. The tests will be within the next two weeks. I did some research (big surprise). Here are a couple websites if you want to check them out:

MRI: Viewing your brain and other soft tissues


MRA: Magnetic Resonance Angiography

More tests

Hi, well, last week I did a couple more tests.

On Tuesday I went to see the urologist following the discovery of blood in my urine. Luckily he doesn't believe in being invasive unless necessary and he doesn't think there is anything other than the PKD causing the blood.

Then, on Thursday I went to radiology to get suited up in an ambulatory blood pressure monitor. I had to wear it for 24 hours and let me tell you... I was so ready to get it off by the next morning!!! It squeezed my arm so hard I had bruises! Hopefully they won't order that test again. I get the results from the tests on Hallowe'en.

Broken

My poor husband. He chose a bride he thought would be a good mate to have children with. Little did he know.

I'm broken.

Blood in my pee

Well, following a couple urine analysis tests my nephrologist has referred me to a urologist due to blood in my pee. The appointment is next week. Apparently I can expect to get a camera shoved up into my bladder so the doctor can have a look-see. If he doesn't like what he sees or wants a better look there may be a surgery. Oh goody.

Diagnosis

I was diagnosed with ADPKD less than a week ago.

My father, who I hardly knew until 10 years ago, committed suicide last December and in the autopsy report I learned he had PKD. Since it's a genetic disease and a CT scan from a couple years ago detected "shadows" on my kidneys I decided to get officially checked so I could rule it out and not worry. Well, obviously that backfired.

Since the diagnosis I've been doing research daily. My diet has already been amended to low-protein/low-sodium. Let me tell you how much fun that has been. I was someone who LOVED to cook and try out new recipes. Definitely a carnivore. Now I could care less. I feel so blah about everything. I suppose it's because I'm upset.

I feel so lonely. I'm scared and don't feel like the people in my life can empathize with me. How long before I go into kidney failure and have to be on dialysis? Will I have to get a transplant? When will a cure be found?

My family hasn't mentioned the disease since I told them I have it. I realized Sunday night I must be pretty scared because I started crying for no known reason. I'm trying to be optimistic but that's hard at the present moment. I'm normally such a positive person. What's happening to me?